January 17, 2008
Susan Writes:
Dear Friends....
Thanks for your many calls to check on me. I have been fine all week. It looks like I'll have alternating good and bad weeks.
Kitty and I went up to Durham yesterday for a visit with Chasie so I'd be close to Chapel Hill for my early morning CT scans today. They predicted some snow, but all we've had is a dreary, rainy day. Of course we appreciate the rain, but Kitty had to drive in the rain through all the traffic on 40 with her little Subaru. What would I do without my wonderful sister?!?
The CT scans were an ordeal, but nothing showed up. This report mirrors my Nov. CT scan. They couldn't really see the pancreas. Only one undetermined lung spot is visible. It's too small to biopsy at this time. My Dec. tumor markers doubled. However, the best news is that my pain has decreased significantly. So, the doctor and I are holding onto the hope that the chemo is working to shrink the tumor on my pancreas. We decided to continue with the current chemo for 3 more cycles. Then they'll try a PET scan to check on my status. I can do this.
We enjoyed a nice lunch with Pattie and got a first-hand report on Lindy. She's upbeat and reports that things are moving along as expected for her hubby. He had a transfusion this morning and was groggy. We did not even peep in to see Lindy for fear of taking in a germ.
Best,
Susan
Susan and Wardlaw Lamar
169 Candlewood Road
Rocky Mount, NC 27804
suslamar@aol.com or wardlaw@valfirm.com
(H)252-443-6589 (Susan's cell) 252-567-5360
(Wardlaw's cell) 252-908-7516
________________________________________________________________________________________
December 28, 2007:
Susan Writes
Thanks for many Christmas wishes and prayers during the holiday season. Your support and encouragement continue to amaze us. Wardlaw and I think we have been so fortunate. Things seems more difficult with the recurrence of the cancer, but we still think 2007 has been a very good year. We wish for you a very Happy New Year.
UPDATE:
I went back to the Lineberger Cancer Center in Chapel Hill Dec. 27 for an evaluation of my new chemo. My 2nd cycle of the new chemo combination, Folfox, was really dreadful. I think I have experienced all possible side effects. In reality, I was so sick that I almost missed Christmas. However, on Christmas Eve IV fluids and a shot to boost my white counts pumped me up enough that I was able to enjoy our big family dinner and our 2 precious grand daughters on Christmas Day. What joy! I am feeling better now, but still have some of the side effects. I had blood work done and will get the results of the tumor marker tomorrow.
In the meantime, Dr. Goldberg has adjusted the protocol for the next cycle of treatment. Apparently my local Onc followed correct Folfox protocols for colon cancer, but the European trails used different procedures, mixes of the 3 drugs, etc. for PC. Goldberg has written it out step-by-step this time. He assures me the correct administration of the new chemo will help me get along better with my 3rd cycle, which begins Jan. 7. We will re-evaluate the treatment after my 3rd cycle and scans. Goldberg has helped me figure out how to manage the side effects better also. I feel fortunate to be in such good care at the Lineberger Cancer Center. The doctor and I did talk more about the surgery option to remove the remaining portion of the pancreas. Wardlaw and my sister had lots of questions for Goldberg. He said PC is a "whole body" disease, rarely confined to just the pancreas. Removing the entire pancreas (as a 2nd line of treatment) would not assure that it hasn't already moved, which is a fact with the whipple also. He spoke of the complications that may occur if we went that very unusual route. He mentioned the difficulty of re-connecting the digestive system a second time. I could tell he does not consider surgery as a good option for me, especially while my lung nodules are still not identified. He plans more scans in mid Jan. after my 3rd cycle of Folfox to check on the lung.
I was pleased to report that my back pain has decreased significantly December. The doctor agreed that may be a sign that the new chemo is shrinking the tumor on the pancreas already. So, I am looking forward to stretching out Christmas a bit, playing with the girls, and the New Year. We have good friends coming to stay for a couple of days and will celebrate the end of 2007 with them. Then Jamey will be here for a visit. Yea! We are leaving the tree up and loving the glow. T'is my favorite time of the year.
WHAT CAN YOU DO TO HELP?
Start spreading the word about the fundraiser Wardlaw and I want to initiate for research and treatment of all cancers at the UNC Lineberger Cancer Center. A small planning group has taken the ball and is running with it. They are planning a first annual Dog Walk in our community. No kidding.
What: PAWS FOR A CAUSE
When: Oct. 4, 2008
Where: somewhere in Rocky Mount, NC. . . TBA
Why: to raise funds for cancer research and treatment for all the people in our state
Save the date for the big event. Plan to register your dog or come watch. It's ought to be a hoot.
If you'd like to send an end-of-the-year check to PAWS FOR A CAUSE, please make it payable to PAWS FOR A CAUSE
Mail to
Mary McAdams,
204 Candlewood Rd.,
RM, NC 27804.
Contributions can be earmarked for a specific cancer.
If you'd like to be part of the PAWS planning group, please let us know.
THANK YOU!
Susan
_______________________________________________________________________________________
December 12, 2007
Susan Writes
__________
Bad
news:
It
is so hard to tell you that I've had a recurrence
of the cancer. It showed up first in my blood work.
The tumor marker has been creeping up for the last
2 months, even though recent CT scans showed no
evidence of disease. I've also had some back pain,
so the doctors ordered a PET scan in late Nov. which
lit up on the remaining portion of my pancreas.
There are some worrisome nodules on my right lung
too.
Good
News:
Instead of my team of doctors in Chapel Hill telling
me there was no hope, they are putting me on a chemo
combination that has been approved in Europe for
Pancreatic Cancer, FOLFOX. I had a portion of the
first cycle of treatment, a 5 hour infusion, Fri.
morning. They'll push the rest for 24 hours. Then
I'm off for 12 days. They'll keep close tabs on
me to check the effectiveness. The side effects
don't sound like fun, but I am ready to fight. If
the toxicity is too great or if the new chemo combo
isn't proving effective, we have a Plan C and D
in mind.
I
am feeling fine and continuing with all the usual
Christmas activities. You don't have to say a word.
I know I have your support.
Much
love
Susan
September 6, 2007
Susan Writes
__________
I
was at the UNC Lineberger Cancer Center for tests
today and was told that I still have N.E.D. (no
evidence of disease).
Whew!!!
Exactly one year ago I faced surgery on Sept.
6 praying the doctors would be able to remove
the cancerous tumor on my pancreas, one-half of
my tummy, my gallbladder, and about 12 inches
of my intestines. I knew that the complex surgery,
known as "the Whipple", was my only
hope for survival. My prayers were answered as
Dr. Kim did the "Whipple" on me. Previously, he
told me that if
(1) I was indeed a candidate for the
Whipple, (2) I could make it
through the difficult recovery and
(3) I could manage the planned chemo and radiation
treatments for a year that he thought I would
be a survivor of Pancreatic Cancer. So we are
celebrating my first year as a survivor.
It's almost Wardlaw's 2nd year and he's doing
GREAT. We feel fortunate indeed.
Ironically, Luciano Pavorotti died of Pancreatic
Cancer today. He had the Whipple procedure
at Columbia in NYC July 2006 and reportedly had
5 cycles of chemo afterwards. He had back surgery
months before. There was much speculation about
his back pain really being pain from the cancer,
one of the subtle symptoms of PC. My brother Page
experienced the same back pain and unsuccessful
back surgery a year before he was diagnosed
with PC. No diagnostic tools are available and
no new treatments have been developed in 30 years.
How I hope Pavorotti's death will raise awareness
of this deadly cancer!
 Lung
Cancer took the life of my sister, Beth
Tuttle, on July 9. She survived lung cancer 17
years ago and colon cancer 5 years ago. The recurrence
of lung cancer didn't take away her spirit. See
this wonderful picture of her as the life of the
party. Our family has been very needy
this past year. In addition to losing Beth, my
brother Page died with PC in Oct. 2006
and we lost one of Wardlaw's brothers in March
2007. The important people in our world,
our family and friends, rallied around
us to offer prayers and support. My heart
is full of gratitude for all you have done to
help us through the tough times. Please know both
of us are doing fine now. Cancer isn't always
a death sentence. We are learning how to live
with cancer as a chronic disease.
More about NED: Shortly after
I was told that I had N.E.D. (no evidence of disease), Wardlaw
and I adopted a 6 year old toy poodle. We found
him, scruffy and starving, wandering around
the Church of the Good Sheppard in Rocky Mount
early in the summer. No one answered our ads in
the paper - Thank Goodness! We fell in love with
him and named him NED.  His
middle name is Godfree because we think God
sent him to us free. Of course, I have spent hundreds
at the Vet getting him healthy. See how adorable
he is below. That's Eva Keel with us on our pier
at the beach. She one of my brother's 6 grandchildren
and the daughter of Page and Donna Keel from Greensboro,
NC
Glorious summer: We'll never
forget the summer of 2007. We kept the road to
Pine Knoll Shores hot. Wardlaw had a big case
and just couldn't pull away for extended time,
but we spent as much time as we could at our beach
place. We love it there. So do Lewis and Terri
and the grand-daughters, as you can see. Actually
the girls prefer the ocean and the sand,
but they've learned to swim and love to show off
for Poppy at the pool. The girls bring us so much
joy...and leave us totally exhausted.
 
Plans for the Fall: One friend accuses me of doing more than my share of flitting around. I have re-gained my energy and have so many things I want to do. We have 2 exciting trips planned. We'll visit Jamey and Linda in Boise in Oct. and will go to Paris with friends in Nov. Wardlaw and I will extend our stay in France a little longer to visit Normandy.
Contact information: Most folks are in direct contact with us now, so please note all contact information below. Our good friend Martha Daniel has been relieved from managing the Susan site. We would love to hear from you or, better yet, c-o-m-e v-i-s-i-t.
Ain't life grand?!?
Susan and Wardlaw Lamar
169 Candlewood Road
Rocky Mount, NC 27804
suslamar@aol.com or wardlaw@valfirm.com
(H)252-443-6589 (Susan's cell) 252-567-5360
(Wardlaw's cell) 252-908-7516
____________________________________________________________
June 10, 2007
Susan Writes
Last Chemo Celebration
My last chemo treatment was May 21. That was cause for celebration, which Wardlaw and I did by traveling to Charleston for the Spoleto Festival. Our son Jamey, who lives far away in Boise, was part of Piccolo Spoleto for 2 weeks. We had some quality time visiting him and attending some of the events - mostly marvelous music, but we did catch one play and see incredible art. My friend Frankie Stutts Boyd came for a couple of days when my hubby had to return home to work for important case. Jamey loved her. Wardlaw did his legal thing and returned to join me, Jamey's wife and MIL (mother-in-law) for a long weekend, which was such fun. We came home on June 4 so Lewis and Terri could go visit Jamey for Spoleto's Finale. We are keeping Anne Carlton, Amelia, and Otis, their dog, for them now. Time with the grandchildren is the most fun of all!
NED News
I went to The Lineberger Clinic in Chapel Hill this week, where I had full body scans. Dr .Goldberg said my scans showed that I have N.E.D. which means No Evidence of Disease. We are thrilled with the good news and feel so fortunate. I firmly believe God's hand worked through my brother's death. Thanks again for your prayers. Longevity is still a long shot for PC victims, but it's a relief to know I can look forward to more wonderful days this summer. My surgeon tells me a major milestone will be the one year point, which will be September. So, I will no longer have any treatment plans - nothing but the artificial enzymes to help me digest food properly. The doctor advised working on weight gain, rebuilding muscle, and a carefree summer. The entire team of doctors will continue taking good care of me and will monitor me carefully with frequent blood work and scans every 3 months for a while. For now, the coast is clear for us. Wardlaw is calling me NED.
Future Plans:
The carefree summer has started. We're looking forward to the clear coast at our beach place in Pine Knoll Shores. Wardlaw is promising to cut his work back to 3 days a week, so his gardens should be masterpiece this season. Hopefully he'll to be able to hang out at the beach with friends and family too. The NC Dept. of Public Instruction has asked me to work a couple of days, which I am thinking I may do. My life seems way too full to return to full time work now though. I want to get involved advocating and/or fund-raising for research in the field of Pancreatic Cancer and Multiple Myeloma. I have so much to do. Your support have carried me through the tough times. Wardlaw and I treasure you and still need your support. We will celebrate each and every day with friends and family members who are dearer than ever.
Contact information: Most folks are in direct contact with us now, so please note all contact information below. We would love to hear from you or, better yet, c-o-m-e v-i-s-i-t.
Ain't life grand?!?
Susan and Wardlaw Lamar
(cell for Susan) 252-567-5360
(cell for Wardlaw) 252-908-7516
_______________________________________________________________________________
March 28, 2007 Susan Writes:
The Drug Holiday is Over
It was a blissful holiday for 3-4 weeks - no doctors' visit, no needles, no meds and only a little fatigue. I was beginning to feel almost totally normal. Now I am back into the routine of daily (almost) visits to the doctors, tests, and chemo treatments locally. The chemo is the same cocktail I had before Christmas, so I thought I knew exactly what to expect. Wrong! The usual side effects seem tougher this go-round. Perhaps the treatments have a cumulative effect. We are hanging in there though and making it through the "down days".
Scary Learning Curve
We have learned so much about our blood and can read the lab reports pretty well now. My liver indicators began to rise in late Feb. and concerned all of us. The Dr. ordered more tests. It was scary, but nothing showed up. Now, my liver function is back in the normal range. Who knows what caused the elevation in numbers (Maybe it was too many glasses of wine.) and the rapid fall? Regardless, I feel lucky again.
Chemo Duo
The rest of my blood counts are still all over the place, which is nothing new for us. They have pumped me full of shots to boost my red and white counts, so I have been able to get my scheduled chemo so far. The doses have been reduced to manage the side effects I experienced. I didn't even beg for the full dosage after the terrible time with my first round. They are watching me carefully and doing labs on me daily. Anemia is one of the problems too. It seems my chemo schedule will be altered now to allow my body time to settle down. This means I should have no side effects while in Montgomery for the Easter weekend.
Elizabeth Edwards
I am glued to the story about Elizabeth Edwards' recurrence of cancer. The announcement that the campaign for President will continue may be premature since her tests aren't complete and treatment decisions aren't made yet. However, I am pleased that her very public attitude will help others understand that Cancer is not necessarily a death sentence, but rather a chronic disease that can be treated.
Good News
Wardlaw and I are thrilled to have been asked to be on the UNC's Lineberger Cancer Center's Board. We feel truly honored. It will be a joy to give back for others.
Thanks Again
We appreciate your continued support, encouragement, and prayers. You have helped make the "down days" pass more quickly. Happy Springtime!
Susan
169 Candlewood Road
Rocky Mount, NC 27804
suslamar@aol.com
(H)252-443-6589 (M) 252-567-5360
___________________________________________________________
Friday, February 23, 2007
I am so pleased to report that we are doing fine. Prayers are working. I am convinced that the reason we are doing so well is because of the constant support and encouragement from our good friends and dear family. Thank you. We are blessed.
The recent treatments in Chapel Hill have come to an end with only a little fatigue to show for it. I seem to have avoided serious side effects from the chemo/radiation. In fact, we enjoyed our time in Chapel Hill so much. I was almost sad to say good-bye to Charlie and our home away from home in Southern Village. Wardlaw was able to get away from work at least once a week, so we enjoyed having some time to explore "Blue Heaven" and visit with some old friends. Thanks go to all my girlfriends who came up to keep me company. Who would have thought chemo/radiation could be such fun?!? It is good to be home though. More chemo is on the agenda after a 3 week "vacation" but I know what to expect this time. I will be repeating the treatments I had before Christmas. The doctors promise I will complete all treatments in the spring. When I asked for a definition of spring, I was told that June was not spring. So, the end is in sight. My sister, Beth, and I are looking forward to a visit from a CA cousin and an old roomie from Mississippi in late March. Beth is much stronger. Her hair is growing back in with no gray in sight, so she's looking good. Hope I will be as lucky. She starts on a new chemo this month, which promises to be kinder and gentler. Wardlaw and I have planned a trip to Montgomery, AL at Easter to see all the Lamar family. They have an annual Easter Egg Hunt, which is really their annual family reunion of 70-80 immediate family members. We have never missed it. Jamey and Linda will miss it this year because they are going to Amsterdam (good excuse!), but Lewis, Terri, and the girls will be there with us. One of Wardlaw's brothers gives up his house for us, which is so kind. I think he'd rather stay elsewhere than put up with Anne Carlton and Amelia's chaos. Interestingly, there will be 4 other Amelias at the Easter Egg Hunt. The name belonged to Wardlaw's mother and sister, so all the younger generation has honored them.
Did you hear I have broken 100 now? :-)
|
January 15, 2006
Note: Susan is happy to have started her radiation last week in Chapel
Hill and she has been blessed with a friend's offer to let
her use her condo at Southern Village during the 6 weeks she
will need to be there Mondays through Fridays. She would
love to have friends visit......as she will still need a
ride back and forth to the hospital even while staying in
Chapel Hill, so she would love to have you come up and enjoy
Chapel Hill with her for an overnight or an afternoon!
You
can contact Susan on her cell phone:252-567-5360;
also email,
suslamar@aol.com
The condo's address in Chapel Hill is 200 Brookview - right
off the circle in Southern Village, which is right off
15-501 towards Pittsboro and very close to the hospital.
January 15, 2007 Susan Writes:
Just wanted to let you know I am doing fine after my
first week on the new chemo/radiation treatment. Friends
from Wilmington, Mary Ann and Spencer Everett, offered
us the use of their condo in Chapel Hill, so we have a
home away from home for Jan.-Feb. It's located in
the charming little Southern Village. I hope to enjoy
many of the area happenings while there before the tough
part of radiation hits me. How lucky we are to have such
supportive, long-time friends!
My new chemo is in a shoulder bag and delivered 24/7 by
a pump. I have named my "new bag" Charlie Chemo Lamar.
Sometimes he is known as C.C. He is a nuisance - bigger
and heavier than any pocketbook I own. He
becomes lighter as the week's worth of chemo is infused
into me, Today, he's fat once more because the nurse
came by this morning to replenish him. The only trouble
is I keep forgetting Charlie and attempting to walk
away. I can't seem to remember that he has to stay with
me always. If I forget, he tugs on my cord and lets me
know to retrieve him. I have learned to sleep with him
though. Don't start rumors.
So for the next 6 weeks, I am inviting friends
to come stay and play with me in Chapel Hill.
Charlie, Wardlaw, and Susan hope to see you soon.
|
Saturday, December 23, 2006
MERRY CHRISTMAS!
Susan is doing so well right now and so busy enjoying the Christmas Season with All of her family in town, that she asked me to send all of you, her faithful friends, a Christmas Message.
She asked me to tell you that she certainly appreciates all the many messages, visits, cards, food and interest in her from you over the last few rather harrowing months. Your faithfulness has been overwhelming..........
Son Jamey and Linda are in town from Idaho, and along with other son Lewis and wife Terri and their two little girls, Susan and Wardlaw are in hog heaven! Susan looks great and her house is decorated to the hilt. She hasn't missed a party and has even done a little work for Avid!
Truly an Amazing Woman!!!
Susan has tolerated her chemo pretty well lately and keeping her fingers crossed that she will not repeat the cycle of obstruction she has experienced a couple of times since she began her regime..... and knock on wood, so far so good. December the 26 she is scheduled to go to Chapel Hill to begin the things necessary to start her radiation, which will last for 6 weeks. At some point she may need to stay in Chapel Hill as an out patient towards the end of the treatments, but she will keep you posted on that. Those prayers still count!
So.......we decided that until something newsworthy occurs, NO NEWS IS
USUALLY GOOD NEWS and therefore no new messages will be posted for a while. The site will still be up so that you can check on her and still leave messages, but should you want the VERY latest info and to touch base with her, give Susan a personal call, email or write her at
Susan Keel Lamar,
169 Candlewood Road
Rocky Mount, NC 27804
suslamar@aol.com
(H)252-443-6589 (M) 252-567-5360
She also asked that I post the following site that you will get a kick out of...........see a picture of Wardlaw as an elf, doing a funny dance! Just paste in the following URL:
http://www.elfyourself.com/?userid=927d6ec178dc650bdb693aeG06122214
Happy Holidays to everyone and blessings for the New Year
ahead.
M
|
Saturday, December 2, 2006
Susan Writes:
One more piece of sad news for our family:
Wardlaw's brother, Leonard, died on Thurs. Wardlaw is
off to Montgomery this weekend for the services. Leonard
was 91, still so sharp, and much loved. I so wish I
could be with all the Lamars.
Just wanted you to know I am doing fine now, after 2
visits to Chapel Hill this week. 5 specialists are
looking after me, which gets confusing sometimes.
However, I am convinced that I have a great team. All
of us agree that I have a digestive system that is still
healing and fragile. The majority of
the doctors advise holding off on radiation until my
episodes with possible obstructions (or whatever they
are) are resolved. That's what I will do. Chemo
treatment will continue through December. No one seems
sure what the problem is - perhaps an ileus (?). They
assure me it isn't a tumor. Whew! All fear it
will recur. We pray not.
I want and need the most aggressive treatment
possible to kill off the lymph nodes and/or any
remaining cancer cells. That means I need the
radiation treatment ASAP. So I am disappointed
to have to postpone again. However, this plan means I am
more likely to be able to enjoy Christmas more,
which makes me very happy.
Believe it or not, I will be back to some of my beloved
AVID work for just one day next week.
Hopefully, someone else will be named State Director
soon. The new CEO from the AVID Center in CA is coming
to Raleigh to meet with Jim Hunt and get the lay of the
land in NC. We are presenting to the Ed. Oversight
Committee Tues. morning.
S. Lamar
|
Sunday, November 26, 2006
Susan Writes:
We are learning that the road to recovery is not a straight one, I took another detour to the hospital over the Thanksgiving weekend. It turned out that the blockage developed again. I endured the nose tube once more and the issue resolved itself in 3 days. It appears there may be a problem within my new digestive system, so the doctors will confer about what to do next. Finally I am home, sweet home, and on the mend.
S. Lamar
|
Thursday, November 2, 2006
Susan Writes:Good
visit to Chapel Hill today. The highlights were the
beautiful fall leaves on the roadways and our stop at Logan's to
buy pansies.
The Latest Plan: The doctors in Chapel Hill did consider
my obstruction episode over the weekend a bit of a set back, but
we are plowing forward with the gemzar chemo. They want to hold
off on the radiation since obstructions sometimes recur.
We have decided the adjusted plan is going to fit the upcoming
holiday schedule better. The team of doctors took so much time
helping us understand plans for the radiation. All in all, they
are pleased with my progress. So, I'll begin another chemo cycle
next week.
The genetic study has shown Page's tumor and mine to be the
same type, so I plan to talk with the lead investigator at
UNC-CH further. All of the family will also participate in
studies at the Mayo Clinic.
Susan
|
Tuesday, October 31, 2006
Susan came home from hospital this morning, very thankful that
her blockage is gone but feeling a bit rocky having not eaten
any solid food for several days. She will be heading for
her check up in Chapel Hill later in the week!Please note:
There have been some technical
difficulties for some of you (especially AOL users) in
submitting messages for Susan. We apologize for any
inconvenience. Part of the problem happens when more than one
person is attempting to send a message. And Susan has had more
than a thousand messages!!
As a back up, you might consider highlighting your message in
the box and right click to make a copy of what you wrote.
That way, if it doesn't submit first time, you will have a copy
of what your wrote and won't have to re-type. But don't
give up.......PLEASE TRY AGAIN!
|
| Monday, October 30, 2006
A Bump in the road. Looks like Susan may have avoided a
potential set -back over the weekend. She asked that I report
that she is planning on going home Tuesday, but that she spent
last three nights at Nash General Hospital. Beginning Friday,
she had severe abdominal pains and was admitted to hospital at
midnight with a possible blockage in her intestines. Such
blockage is not unusual after the type of surgery that Susan
had. They inserted tubes thru the nose to alleviate the pressure
and hoped that by "resting" her intestines that the blockage
would resolve itself.....otherwise, surgery would be the result.
That was grim news.
Good News. However, by Sunday afternoon, it appeared
that blockage had disappeared! They are keeping her today as she
is now being given soft food to be sure that this will not occur
again. So, she is keeping her fingers crossed that this was just
a minor bump and that she can resume her chemo treatments and
get on with her recovery.
Keep up the Positive Thoughts. Needless to say, she is
one happy lady. But let's continue sending her positive thoughts
and prayers. She will go back to Chapel Hill Thursday for a
check up. All in all, she's done pretty well with her surgery
recover and with grace, humor and great spirit. She sounded
cheerful and strong and again asked to thank you all for
your prayers and messages.
M
|
Tuesday, October 24, 2006
Susan writes:
My Mind: Ed Norfleet, a dear friend from long ago, tells us that cancer will take your mind places you have never been before. We are on a steep learning curve and finding his words to be so true. We have learned the anatomy of hope. We find joy in unexpected places. Would you believe I was delighted to empty my own dishwasher this morning?!? Sometimes I feel I am 2 people in one body. Wardlaw teases me and says it just my chemo brain. Whatever, we consider it a good, new benefit. Thank you, Ed.
My Gratitude: My family has been bombarded with expressions of sympathy upon the death of my brother from pancreatic cancer. Each card has touched us. I was conflicted at his beautiful services in Wilmington though. I have feelings of gratitude that his diagnosis may saved my own life and feelings of enormous sadness that he only had 8 short weeks. We adore his 5 children and wonderful wife, Melissa. All of the us will pull together and get through the tough times.
Sister news: My baby sister, Kitty, is on a trip to Italy, after exhausting duties as chief sister in the Keel family. Not only has she been there 24/7 for me, but she has been there for my sister Beth also. Wardlaw and I went to see Beth in Morehead City last weekend. I am pleased she is home again, doing better each day, and enjoying 2 -3 week "drug holiday".
My treatments: I am in the midst of weekly chemo now. The fatigue is real, but it only lasts a couple of days. The weirdest side effect has been a swollen, painful leg. You should see me hobbling around. We returned to Chapel Hill yesterday and the Dr. feared it was a blood clot. He sent me to the hospital for tests that proved him wrong. Everyone is thinking it is just an unusual weird side effect from chemo. The doctors intend to reduce the chemo dosage slightly to see if I can avoid the leg difficulties.
Hand Sanitizer: My blood counts are plummeting now, a normal side effect. The Dr. is giving me shots to boost the growth of good cells in hopes that I will be strong enough to complete this first cycle of chemo by week's end. I am giving myself the "patient patient" lecture once again. It was a bit disappointing to learn the treatment schedule may be altered. I am anxious to keep moving forward. We have installed a huge Purcell hand sanitizer at the front door, so come on over to see the "patient patient" and her hubby. I may have to stay away from germ-filled crowds, but visitors are still welcomed here.
Susan
Susan Keel Lamar,
169 Candlewood Road
Rocky Mount, NC 27804
suslamar@aol.com
(H)252-443-6589 (M) 252-567-5360
|
| Sunday, October 15, 2006
It is with a sad heart that Susan asked that I
inform you that her brother,
Page Keel, died Saturday night, October 14th, in Wilmington.
There will be a memorial service at the First Presbyterian
Church in Wilmington on Tuesday, October 17 at 2:00 PM. The
family will receive friends in the courtyard after the service.
His obituary can be read online at http://www.legacy.com/RockyMountTelegram/Obituaries.asp?Page=Lifestory&PersonId=19602066
|
Tuesday
October 10, 2006
Susan Writes:
Chemo begins: The highlight of my first day
on chemo has been no nausea. I feel grateful for
that. Nothing hurts but my new port, which was installed on
Friday in the Surgery Pavilion in RM. This round of
treatment will be only once a week for 3 weeks. Whew! I have
been given an arsenal of meds to manage the side effects. So
far...so good. I am convinced the hardest part, recuperating
from surgery, is almost behind me. I am still here all day
every day until I am stronger though, so please stop by to
keep me company.
Entrance back into the real world: You guys
have been so good to me. Friends were successful in getting
me out for lunch once this past week and out for dinner on
Sat. night. I may need pushing from time to time because I
do tire easily. However, it does me so much good to be with
good friends. Wardlaw suffers from cabin fever under usual
circumstances. (Staying home on Sat. night is never an
option.) Besides no one has to rock me to sleep after a
night out in RM town.
One more piece of good news: I have put on
2 whole pounds this past week. Can you believe that's a
reason to celebrate?!?
Sad news: My brother Page has been moved to
the Hospice House in Wilmington today. He is resting
comfortably with many family members at his side.
My family and I appreciate all of your many prayers.
Susan
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Saturday, September 30, 2006
Susan Writes:
The questions have been pouring in since our exhausting trips to Chapel Hill this past week. What did the doctors say? What will the treatment be? Obviously, you understand and share our impatience with the "unknowns". I am definitely happier to know what the specialists think will be the best options for destroying any remaining cancer cells after my surgery.
Here's the plan: I will have chemo alone initially, then a combination of chemo and radiation, and finish with more chemo. The process begins next week and will run about 6 months. I will have a port installed and begin chemo infusions daily for 3 weeks, then off a week. The doctors explained the side effects, which seem manageable. The best news is I can do this part of the treatment locally.
The goal is to begin the next step, the combined chemo/radiation, in Nov. However, the radiologist, Joel Tepper, will not begin treatment until I am stronger. He seems very concerned about my weight loss. Me too. He explained that my job in October will be to reverse the weight loss - suggesting that I eat all day long. Remember - part of my plumbing has been removed or is re-arranged. So, eating is a challenge for me. However, after a lifetime of dieting, I will stuff myself now. I am determined to beat this thing and gain strength from proper nutrition.
"Sand therapy" was recommended since this weekend was expected to be beautiful, so Wardlaw and I have escaped to our beach place at Pine Knoll Shores. Fall is one of our favorite times here, so how could we resist? The flowers on the deck are still blooming so I have a perfect spot for relaxing and watching the water. Wardlaw plans to fish early tomorrow morning since they are biting. He picked up his permit to take the SUV on the strand beginning Oct. 1 also, so we'll picnic on the beach Sunday. This prescription of "sand therapy" is good for both of us.
I am still overwhelmed with your many messages of hope and encouragement. Hearing from you guys and seeing the smiling faces of friends and family have kept me going, growing stronger, and gaining new perspectives. Thank you. Thank you. There is no way I can respond individually at this point, so I am counting on mass communication through Martha's web site.
S. Lamar
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Sunday, September 24,
2006
Susan Writes Her Own Update:
I am home,
sweet home - arriving to yellow ribbons
tied on all the trees. (Suspects are my sister, Kitty
Anderson, and good neighbor, Mary McAdams.) The tears of
happiness started then. People have been so kind. There is
so much food coming in you would think someone had
died. Wardlaw has never eaten so well. My tummy still
hasn't learned all the new connections yet, but I am experimenting with
all the tempting dishes.
All in all, I think I am doing
pretty well. I know the recuperation process will
take some time, so still I am trying to be a patient
patient. Please come see me. Visitors bring me energy. And
you do not have to call before coming. I'll be happy to
see you anytime.
Wardlaw
is wonderful in his new role as caregiver - never
leaving my side. He is as happy to be at home as I am
(since the hospital room was somewhat confining for
someone with enormous energy). I must report on his project
while we were in Chapel Hill. As he checked me in for
the surgery, we marveled at a beautiful butterfly garden
at the entrance to the Children's Hospital. However, Wardlaw
pointed out that there were no butterflies or
possible hosts plants for caterpillars. After making some
inquires about the garden, he volunteered to remedy the
situation. Each day while I dosed and healed, he would
steal way for an hour or two to work in the butterfly
garden. Now Milkweed has been planted, and pupa cases
carefully placed nearby. Wardlaw has a new set of fans
within the administrative staff at the Hospital. They are
having some signs made to designate his current and future
planned additions.
Good
news on the family front: My sister,Beth,
has rallied a bit lately. Page finally went to Chapel Hill
on Friday, so we can complete the genetic study now. He
will begin a clinical trial next week.
Anne
Carlton and Amelia: The best medicine so
far has been brief visits with the grandchildren. I was
pleased they hadn't forgotten their GaGa and Poppy. Anne
Carlton lectures me about "not belonging in bed until
nite-nite time". Amelia just snuggles, which melts my
heart. They couldn't wait to show me their new polka-dot
shoes.
Martha's
site: Can you believe I actually survived
13 days without my computer or access to the Internet? I
have finally had time and energy to read all the many
messages. I am so-o-o appreciative of the web site Martha
created and the many messages and prayers from those I
love. Please know how much encouragement and joy
you guys have brought us. Thanks. Wardlaw and I feel
overwhelmed. I am not able to respond individually to all
your messages yet, but we'll treasure each one.
Next: I
will return to Chapel Hill twice next week to plan for
chemo and radiation. It is comforting to know you are
there to help me down this road.
Love,
Susan
Susan
Keel Lamar
169
Candlewood Rd.
Rocky Mount, NC 27804
suslamar@aol.com
(H)252-443-6589 (M) 252-567-5360
|
| Wednesday, Sept. 20
Welcome Home, Susan!
|
Early Tuesday Morning September 19
Susan Planning to Be Home Wednesday!........an
Update from Joan Yelverton
The news we have all been waiting for---- at this point Susan is on
her way home!
As wonderful as this is, the next step will be a
big one and is a little overwhelming for the Lamars.
A little preplanning for her return home will make things run
smoother. The family has
suggested for the first month limiting visits as well as setting up a
schedule for bringing food.
Joan and
Ben Yelverton
are going to channel the flow of food.
You can contact them by email
Jacyel@cox.net
or home phone 252-443-1272 or cell phone 252-266-4999.
If you wish, you can view a Food Schedule Calendar to see updated available
dates and more information on line at
http://calendar.yahoo.com/susansmenu
ABOUT FOOD-- It was felt a schedule would be helpful.
Food is welcomed, but in small quantities. Please limit the
amount for enough for only 1 meal — Wardlaw’s appetite is normal to
small and Susan’s is tiny. A
good idea would be to take an individual serving of your evening meal,
not a casserole. Although Susan’s diet is not restricted, her appetite
has not come back and Wardlaw would appreciate your being considerate of
his waistline. (Disposable containers are nice and do not have to be
returned)
ABOUT VISITS— Each day Susan will only be able to have a
few visits and each one should be limited to 10 minutes.
When she becomes tired and needs to rest, a sign will be put on
the door. If you are unable
to see her, a basket with note cards will be available at the front door
for you to leave your greeting and let her know you stopped by. A
call in advance is suggested.
I know all of us want to be helpful and we feel
frustrated not doing anything to let the Lamars know of our love and
concern. Susan’s recovery is remarkable, but it will be some time
before she can resume her normal activities.
There will be opportunities for us all of us to assist her.
Both Susan and Wardlaw are overwhelmed with
our outpouring of love and welcome our continued support with our
prayers, cards and letters. Our thoughtfulness is indeed humbling to
them and they appreciate all our many kindness.
But allowing Susan to save her energy at this
point, we assist her in making a speedier recovery.
Joan
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